Stories

Real families share their experiences — and why better caregiver training matters.

Ashley's Story

A mother shares the daily challenges of raising her son with SYNGAP1 and the constant struggle to train new caregivers who truly understand his needs.

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Lauren's Story

A full-time caregiver to both her nonverbal son and aging father, Lauren opens up about the emotional and physical toll of care.

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Betsy's Story

The story that started it all — how one family's need inspired a platform for every family.

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Have a story to share?

We'd love to hear from you. Your experience could help other families.

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